Resources for More Information: Pheochromocytoma

Author: Christina Bach, MBE, LCSW, OSW-C
Last Reviewed: December 20, 2023

You can find tips on the internet to help you during and after your cancer treatment. You want to make sure what you are reading is true. OncoLink finds these websites to be up-to-date and reliable.

Pheo Para Alliance

Provides education, one-on-one peer support, and online peer support meetings for patients. Also supports research and clinical trials participation.

https://pheopara.org

National Organization for Rare Disorders

Provides education, support, and some financial assistance (disease dependent) for individuals with rare diseases. Also provides a caregiver financial assistance program.

https://rarediseases.org/rare-diseases/pheochromocytoma/

Rare Cancer Alliance

Provides support, education, and online forums to connect with other patients with rare cancers.

http://www.rare-cancer.org

Neuroendocrine Tumor Research Foundation

Provides information, education, and support for patients with Pheochromocytoma and other NETs

https://netrf.org/old-for-patients/nets-info/tumor-site/adrenal/

Cancer Hope Network

Provides one-on-one peer support to people undergoing treatment for cancer and their families through matching trained volunteers who have recovered from cancer with cancer patients currently going through a similar experience.

www.cancerhopenetwork.org

Cancer Support Community

An international non-profit dedicated to providing support, education, and resources to people impacted by cancer. Also operates a Helpline, 1-888-793-9355.

www.cancersupportcommunity.org

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