Preparing for Your First Day of Infusion

Treatment days can be long. Being prepared for this can help with any stress and anxiety you may have. Below are some ways to make your treatment days as stress-free as possible.

This article focuses on infusion therapy. Learn more about the radiation therapy treatment process here.

How can I prepare for my treatment day?

Your care team will ask you questions about your health history, home life, symptoms, prior treatments, and more. Before your first appointment, sit with a loved one or caretaker and talk about these things. It is helpful to write these down in a notebook so you can look back at them during your appointment. Think about:

• Your diagnosis and treatment plan.
• Who is on your treatment team.
• Scans and labs you have had done.
• Your insurance information.
• Your emergency contact information.
• Your goals for care. Bring copies of your advance directives (living will/health care decision-maker).

You can use Oncopilot to download and print forms to keep your information in one place. Keeping these forms in a binder and bringing them with you each visit can be helpful.

How are you getting to treatment?

Make sure you know where to park and where to check in when you get to the treatment center. Call and ask these questions before you go.

Your treatment team may not know how your treatment will affect you, so it is a good idea to have someone drive you to treatment and back home again, at least for the first treatment. If you are taking public transit or ride-sharing, you may also want to have someone ride along with you to make sure you get there and home safely.

If you need help with getting to and from the treatment center, call your treatment center’s social worker or navigator BEFORE your scheduled treatment day for help.

When You Arrive

Try to be early or on time for your appointment. You will probably have blood work drawn before your treatment. The results of these tests can affect your treatment plan for the day, so there may be some time between your labs being taken and when your treatment starts. Your care team, including your oncologist, nurse, and pharmacist take the time to make sure your treatment is safe for you. The pharmacist in the infusion center will then get your medications ready.

There are times when the results of your bloodwork may come back and your provider decides you should not get treatment that day. This is to keep you safe during treatment. Your provider will tell you why you won’t be getting treatment and the plan for your next treatment. Remember, this is normal throughout the course of your treatment.

What should I wear?

It is important to feel comfortable. In general:

• If you have a PICC line in your arm, wear a top with short sleeves or that has sleeves that are loose enough to be pulled up past your PICC line.
• If you have a port-a-cath in your chest, wear a top with a loose-fitting neckline. You can also pull your shirt up while it is being accessed and then put your shirt back down once you are attached to your treatment.
• It may feel hot or cold in the treatment center. Think about wearing layers that are easy to take on and off with an IV line. Bring a cozy blanket if you get cold. A portable, rechargeable fan can be great if you get hot. It can also be dry, so pack a lip balm and some lotion to keep your skin and lips hydrated.
• Some treatment centers are open, with shared spaces. Try to not wear perfume or cologne. Treatment can affect the sense of smell, and you or others around you may be sensitive to smells.

Bring Snacks and Drinks

Unless your care team tells you otherwise, you can often have a snack or drink during your treatment. It is important to keep up with your nutrition and stay hydrated. You may want to pick a snack that is high in nutritional value and somewhat bland in smell and taste. Some good snack ideas are nuts, whole grain crackers, hard cheese, hummus, granola bars, and fruit. Pack a water bottle and refill it while you are at the treatment center.

Since some infusion suites are open, try not to bring foods with strong odors that others may be sensitive to.

Keep Busy

Ask your treatment center BEFORE you come if you can have family/friends stay with you (and how many are allowed). Having someone to talk to, play a game with, and have as support can be a big help. They can also take notes for you about the treatment you are receiving and any instructions your nurse gives you for when you are home.

Bring things to keep you busy---maybe it’s a book, tablet, knitting, drawing, listening to podcasts, or binge-watching a new show. These can all help pass the time and distract you.

Your treatment center may also have services like pet therapy, art therapy, music therapy, reiki, massage, aromatherapy, and other integrative treatments. Ask your nurse or social worker if these services are offered at your treatment center.

Ask Questions

There is no such thing as a stupid question! Your care team is there to answer your questions. Ask your nurse or pharmacist for handouts about each medication you will be given. You can also find medication teaching sheets for all cancer medications here. You can use OncoLink's "Build My Treatment Binder" for personalized information about your treatment course and how to lessen side effects.

Heading Home

You may be feeling tired, relieved, anxious, and happy all at the same time after your first treatment. Once you are home, follow all instructions given to you. Take your medications on time, rest, hydrate, and eat. Keep track of any side effects or new feelings you have, and report these to your care team. Keep a list of questions to bring with you on your next visit.

If you have nausea, diarrhea, or other side effects, call your provider. They can't help you if they don't know it is going on! There are many tips and medications to help with the side effects of cancer treatment. Your provider can help you figure out what works best for you.

This is also a good time to think about how the day went and what you might do differently next time. Did you pick a snack that you wanted to eat? Did you have enough to do to keep busy? Did you have all the information you needed with you? Did your nurse or provider take time to teach you about your treatment plan, and did you take notes? These are some things to think about for future treatments.

Don’t forget to take a moment and recognize---you did it! That first treatment is over and now you know how to make future treatments more comfortable for you.